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Excerpt from 'A Puff of Smoke'
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Excerpt from 'A Puff of Smoke'
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Except from 'A Puff of Smoke'
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Manchester University Medics Paediatric Society Conference, Citylab 0.1.
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Birmingham Rare Disease Society & Students4RareDiseases conference, Birmingham Children's hospital.
A Puff of Smoke
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Details: Pre- Order A Puff of Smoke: Out 7th of November 2019 with Jonathan Cape : When the headaches started, Sarah Lippett would stand alone on a different side of the playground from the other children. When she started to drag one of her legs, her parents took her to hospital, and so began the visits to many different doctors, each one more bewildered by her illness than the last. Initially schooled at home, when Sarah went back to school she was placed with the struggling kids, and still so often ill, she felt even more alone. But although Sarah's parents often despaired of the stream of appointments and no cure, they never showed it and she grew up in the midst of a boisterous, loving family and found good friends at last, as well as venturing into bands, art, boys, books and records. Finally, when Sarah turned sixteen, she was admitted to Great Ormond Street Hospital where the doctors diagnosed her with the rare disease, Moyamoya. The book ends with Sarah waking up after brain surgery. A Puff of Smoke was generously supported by an Arts Council grant that enabled me to share my story at medical conferences and hospitals nationwide.